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February 1, 2016

Comments for a Cause – Running for a Cause

35 Comments/ 5214/ 1

February is here and my heart is filled with so much happiness.  The first of the month is so important here at It’s Just Life because it is the day each month that I reveal how much your comments have raised for the cause of the month and reveal the new Comments for a Cause.  Chris and I have pledged to donate 50 cents per comment (cap of $500) each month to the cause.NFED

This past month we have been learning about ectodermal dysplasias. It is an inherited disorder that involves defects in the hair, nails, sweat glands and teeth. When a person has at least two types of abnormal ectodermal features—for example, malformed teeth and extremely sparse hair—the individual is identified as being affected by ectodermal dysplasia.  This month all of our focus has been on the National Foundation for Ectodermal Dysplasias and their efforts.  Chris and I will be  making a donation of $1 per comment this month instead of the usual 50 cents so  $233 will be going to NFED and I am thrilled to have learned a little bit more about this great organization. Thank you to all who have commented throughout the month on all my posts.

Cupid's Undie Run

Have you ever heard of Cupid’s Undie Run?  Well, I hadn’t until I met my North Iowa Blogger friend Loni who blogs at Lifestyles of the Pantsless last year.  She has Neurofibromatosis and this is a fundraiser that she has spearheaded in Mason City, Iowa in an effort to raise awareness and funds to help with research and more.  Loni is a pretty amazing gal, let me tell you, and her efforts to make the Cupid’s Undie Run in Mason City a “fun”-draiser have been amazing and surpassed a lot of expectations.  I know it has a lot to do with Loni being such a fun person.

I asked Loni to give me a little bit of info about what Cupid’s is and what Neurofibromatosis is all about and she happily sent me the following:

 

Cupid’s is the #1 donor of the Children’s Tumor Foundation, and the purpose of the foundation is to research and find a cure for Neurofibromatosis (a Genetic Disorder I have) where tumors grow along your nerves all over your body. It has the potential to cause someone to be blind, deaf, or have learning disabilities. Tumors are known to become cancerous. There are thousands of different mutations of NF and tons of other medical conditions that stem from the disorder, no two cases are the same.

Cupid’s has raised over $8 million Nation Wide since it’s inception in 2010, with Mason City contributing over $100,000 in the past two years. Mason City is the smallest city by far to host the event but we are literally neck and neck with some of the largest cities who partake (in terms of fundraising and # of participants.)

Just this month CTF was able to grant the University of Iowa Children’s hospital $1.7 Million to their NF clinic (the only NF clinic in Iowa) to research and understand more about NF. I believe that Cupid’s was a large contributor in that, and thanks to new clinical trials that just began last fall, patients participating have reported a decrease in size of their tumors from 22%-27%.

Cupids was started in 2010 in Washington DC by Chad Leather and Bobby Gill, Chad’s brother had Schwanomatosis (the 3rd and worst form of NF) and unfortunately passed away this summer. It started because they wanted to raise awareness about NF and thought it would really raise eyebrowns to run past the White House in their undies. They thought they would have 50 participants but 600 showed up that day and Cupid’s Undie Run was born.

Amy's run

That’s my friend Amy Hild  in the white shirt in the picture above.  Amy had a zest for life and ran the Cupid’s Undie Run last year for the first time.  Tragically Amy was killed in an automobile accident a few short weeks after this event and a team has been formed to run in her memory this year.  #AmysGift has 6 team members at this point and will be running in the Mason City event on February 13th at Music Man Square in Mason City, Iowa. While I won’t be there in person  ( I would be running panting  walking) you can bet I will be there in spirit and lending my support.  That is why I decided this month would be the perfect month to support Cupid’s Undie Run and their support of the Children’s Tumor Foundation.

For each and every comment made on any post during the month of February we will make a 50 cent donation to help with research and awareness of Neurofibromatosis through Cupid’s Undie Run.  Your comments matter. Thank you in advance for your comments.  If you would like to make your own contribution please feel free to click on #AmysGift and support one of these participants.

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#AmysGift Amy Hild charity Children's Tumor Foundation comments for a cause Cupid's Undie Run Iowa Lifestyles of the Pantsless Loni Dirksen mason city Neurofibromatosis NFED
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35 Comments

Leave a comment
  1. Dianna
    February 01, 2016 at 06:58 am

    This is such a wonderful thing you do, Beth Anne! Once again, a disease that I’m not familiar with. That’s sad about Amy; a young person taken so soon.

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 07:21 am

      Thanks for stopping by, Dianna. You know how excited I get about my Comments for a Cause recipients and there are so many worthy ones . I am always keeping my eyes and ears open for new ones and a lot of times my readers help me out with ideas. Thank YOU for being so present here on the blog and taking the time to comment.

      Reply
  2. Judy Hudgins
    February 01, 2016 at 07:36 am

    What a great thing you are doing. How could I not comment!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 07:43 am

      Thanks so much, Judy! It is truly the best thing I do here on the blog!

      Reply
  3. Alicia
    February 01, 2016 at 07:43 am

    Thanks for supporting Cupids Undie Run Beth Ann! Wish you were here, miss you so much!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 07:44 am

      Miss you too but will be there with you in spirit!!!! Have a good run!!!

      Reply
  4. Jeni
    February 01, 2016 at 08:21 am

    Great cause like always!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 09:50 am

      Thanks, Jeni!

      Reply
  5. Marci B
    February 01, 2016 at 09:29 am

    Beth Ann! Chris says THANK YOU! And we say THANK YOU! And, I’ll be so happy to comment throughout February in order to help another friend of yours! I remember you told me about Amy – such a tragic shame!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 09:50 am

      So happy to make a donation to this organization and hope that every small donation can work towards making a huge difference in the lives of those who are affected. Thank you for your support and your comments which really do make me smile!

      Reply
  6. Katy Flint
    February 01, 2016 at 09:32 am

    Love it!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 09:49 am

      Thanks for stopping by!

      Reply
  7. Gibber
    February 01, 2016 at 12:05 pm

    Wonderful Beth Ann!

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 12:14 pm

      Thanks so much! I think so as well!

      Reply
  8. josh
    February 01, 2016 at 12:55 pm

    I can’t express enough how well you raise awareness… Most of your causes, I’ve never heard of before. Thank you for your diligence!

    Reply
  9. Minnesota Prairie Roots
    February 01, 2016 at 02:39 pm

    You both have such a great heart to showcase and support these causes.

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 03:06 pm

      Thanks, Audrey. It is easy to showcase things that are really worthy, isn’t it? This one is close to my heart because of Loni and of course, Amy. Thanks for stopping by so faithfully and commenting. It means a lot.

      Reply
  10. My Odd Family
    February 01, 2016 at 02:59 pm

    Outstanding cause. And I am sure Amy’s family is lifted out of despair knowing that her giving heart and memory continues to inspires people. One year. Goodness.

    Reply
    1. Beth Ann Chiles
      February 01, 2016 at 03:05 pm

      I know—it is so hard to believe it has been one year. Her mom and dad are really amazing people and I have stayed in touch with them over the past year. They are dealing with her death very gracefully but it does not diminish how much she is missed. Thanks for stopping by!

      Reply
  11. Sara Broers
    February 01, 2016 at 11:56 pm

    I LOVE this… It’s hard to believe this has been a year already!

    Reply
    1. Beth Ann Chiles
      February 02, 2016 at 07:22 am

      Thanks, Sara. I just saw Amy’s dad posted about the #AmysGift team—I hope they can make a great donation as well. Thank YOU for stopping by.

      Reply
  12. Hilary
    February 02, 2016 at 07:02 am

    I have never heard of this disease either… You are amazing how you do this every month!

    Reply
    1. Beth Ann Chiles
      February 02, 2016 at 07:23 am

      Thank you for stopping by, Hilary. I love finding causes that are new to so many people and this one is really special.

      Reply
  13. donnahup
    February 06, 2016 at 01:50 pm

    I love this cause for numerous reasons 🙂
    Thank you!

    Reply
  14. Brittany, NFED
    February 08, 2016 at 09:15 am

    Thank you for featuring the NFED in January! Sounds like you have another great organization lined up for February! Love organizations that help kids. This is such a great idea. Best of luck!

    Reply
    1. Beth Ann Chiles
      February 08, 2016 at 01:43 pm

      You are so welcome. That you so much for all the work that your organization does. Hopefully our small donation will help somehow.

      Reply
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    February 09, 2016 at 06:00 am

    […] How about you? If you enjoy tea on a regular basis what do you prefer?  Do you stay true to only drinking loose leaf tea offerings or are you happy with a tea bag?  There are so many options out there now and some of the tea bags are really able to produce a fine cup to enjoy.  Let me know in the comments what you love most and remember all comments go to help support our Comments for a Cause this month – Cupid’s Undie Run. […]

    Reply
  16. Book and a Cuppa Swap Reveal - It's Just Life
    February 15, 2016 at 06:01 am

    […] again but there will be more fun things coming up on the blog this week.  Don’t forget to Comment for a Cause. The Cupid’s Undie Run was a huge success this past weekend but the fundraising goes […]

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  17. pattisj
    February 16, 2016 at 12:18 am

    A friend of our family has a daughter with NF, and I have a FB friend whose son does, too. She flashed her undies for the run recently! LOL I’m glad you mentioned it so I can try to get caught up on my comments this month!

    Reply
    1. Beth Ann Chiles
      February 16, 2016 at 06:48 am

      Oh wow—so you understand the whole Undies thing! Loni is such an incredible lady and her enthusiasm and motivation for raising funds for NF is pretty amazing. Thanks so much for your support.

      Reply
  18. My Advice for Millennials - It's Just Life
    February 18, 2016 at 08:55 am

    […] Don’t forget that every comment this month nets a 50 cents donation to Cupid’s Undie Run. […]

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  19. I Live in the Cloud - It's Just Life
    February 19, 2016 at 06:01 am

    […] Don’t forget that each comment this month will net a 50 cent donation to Cupid’s Undie Run.  You can read more about our latest Comments for a Cause here. […]

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  20. Crossroads - It's Just Life
    February 26, 2016 at 06:00 am

    […] How do you face challenges?  Head on or do you skirt around them and hope that the problem will just disappear along the way somehow?  Don’t forget to comment for Comments for a Cause. […]

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  21. Marian Wolf
    April 19, 2016 at 09:46 pm

    Thank you for supporting Special Olympics of Transylvania County. We have a very active, vital program here!

    Reply
    1. Beth Ann Chiles
      April 20, 2016 at 07:03 am

      Thank you for stopping by, Marian. I know this is a very important group for you and your family and I love wha the local chapter does for the participants. Thank YOU!

      Reply

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